So it's been awhile since we've posted anything about the goings on with us as a family. (I know, not NEARLY as exciting as the goings on of Jake-Man.... don't worry... I'm sure he'll be mentioned) Anyway, I thought I would bring everyone up to date with the whole Long QT situation. There's not a whole lot to tell. Jake is still going to the cardiologist every 3 months or so. This is mainly to keep his medication dose correct, they have to change it as he gains weight. He is oblivious to his "condition". As soon as this LQTS was brought to our attention we made a decision that we WILL NOT live in fear. "For God does not give us a spirit of fear..." we will live in complete confidence and freedom knowing that God IS in control and he IS healer!! We really consider all of this a blessing. LQTS is often NOT diagnosed until it's too late... yes.. too late meaning you have met your expiration date. We believe this is the Lords hand at work in our family. He is increasing our faith day by day. He is strengthening our dependence on Him. He is causing us to walk closer as a family. Who wouldn't be blessed by that??
I guess I do need to add that I too (Wendy) have been diagnosed with the LQTS. It seems I'm the nice parent that shared this gene with Jake... nice.. I know. Through two stress tests, 4 EKG's, two doctors and now medication, we are seeing over and over again the Lords protection over my life these last 32 years. After seeing my EKG's it's nothing short of a miracle that I made it through 10 years of gymnastics, Karate, week long backpacking trips, marching band, zip lines etc and NOT ONCE had an "episode". I'm glad our God is sooo much bigger than any gene or syndrome. His ways ARE higher!!
Some have been asking how other kids play into this. Yes, we do want to have another baby.... not soon, but eventually. This is something we will just add to the list of prayer requests. This gene is like any other and has a 50/50 chance of being passed on to another child. The good news is that this "condition" doesn't get worse or change from person to person. It is what it is. Of course we pray our other child(ren) won't have to deal with it at all.... please join us even now in praying about that... As far as pregnancy goes, I found out just today that it's not a problem. The concern with beta blockers and pregnancy is low birth weight babies. Well, as we all know with Jake weighing in at 9lbs 1oz, the beta blockers may just give me an "average" weight baby. When I do get pregnant, if it seems that the beta blockers are causing "issues" with the baby there is a "vest" I can wear which is basically an external defibrillator.
All in all, we are doing really well. Jake man is grown like crazy and eats like a boy for sure!! I love being a stay at home Mommy and we couldn't be more blessed by Gerald's job. I can't say enough about the office he works at. They have been more than understanding and supportive through all of this. Not once have they even given a second look at the time he's had to take off to go with me to countless cardiologist appointments etc. I can't put into words what it means as a Mom and Wife to know that my husband is SO LOVED and PRAYED FOR, at his job. The love they have shown our family is a living working example of Christ and His family!! Thank You Coldwell Banker, Lubbock!! I am soooo blessed by you!!!
So there is the update for now... Jake-Man just woke from his morning nap, so off I go!! TEN MONTH update will be coming soon!!!! CRAZY!!!!!
December 1st
13 years ago
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