Friday, July 30, 2010

Miller Family Update.....

So it's been awhile since we've posted anything about the goings on with us as a family. (I know, not NEARLY as exciting as the goings on of Jake-Man.... don't worry... I'm sure he'll be mentioned) Anyway, I thought I would bring everyone up to date with the whole Long QT situation. There's not a whole lot to tell. Jake is still going to the cardiologist every 3 months or so. This is mainly to keep his medication dose correct, they have to change it as he gains weight. He is oblivious to his "condition". As soon as this LQTS was brought to our attention we made a decision that we WILL NOT live in fear. "For God does not give us a spirit of fear..." we will live in complete confidence and freedom knowing that God IS in control and he IS healer!! We really consider all of this a blessing. LQTS is often NOT diagnosed until it's too late... yes.. too late meaning you have met your expiration date. We believe this is the Lords hand at work in our family. He is increasing our faith day by day. He is strengthening our dependence on Him. He is causing us to walk closer as a family. Who wouldn't be blessed by that??
I guess I do need to add that I too (Wendy) have been diagnosed with the LQTS. It seems I'm the nice parent that shared this gene with Jake... nice.. I know. Through two stress tests, 4 EKG's, two doctors and now medication, we are seeing over and over again the Lords protection over my life these last 32 years. After seeing my EKG's it's nothing short of a miracle that I made it through 10 years of gymnastics, Karate, week long backpacking trips, marching band, zip lines etc and NOT ONCE had an "episode". I'm glad our God is sooo much bigger than any gene or syndrome. His ways ARE higher!!
Some have been asking how other kids play into this. Yes, we do want to have another baby.... not soon, but eventually. This is something we will just add to the list of prayer requests. This gene is like any other and has a 50/50 chance of being passed on to another child. The good news is that this "condition" doesn't get worse or change from person to person. It is what it is. Of course we pray our other child(ren) won't have to deal with it at all.... please join us even now in praying about that... As far as pregnancy goes, I found out just today that it's not a problem. The concern with beta blockers and pregnancy is low birth weight babies. Well, as we all know with Jake weighing in at 9lbs 1oz, the beta blockers may just give me an "average" weight baby. When I do get pregnant, if it seems that the beta blockers are causing "issues" with the baby there is a "vest" I can wear which is basically an external defibrillator.
All in all, we are doing really well. Jake man is grown like crazy and eats like a boy for sure!! I love being a stay at home Mommy and we couldn't be more blessed by Gerald's job. I can't say enough about the office he works at. They have been more than understanding and supportive through all of this. Not once have they even given a second look at the time he's had to take off to go with me to countless cardiologist appointments etc. I can't put into words what it means as a Mom and Wife to know that my husband is SO LOVED and PRAYED FOR, at his job. The love they have shown our family is a living working example of Christ and His family!! Thank You Coldwell Banker, Lubbock!! I am soooo blessed by you!!!
So there is the update for now... Jake-Man just woke from his morning nap, so off I go!! TEN MONTH update will be coming soon!!!! CRAZY!!!!!

Thursday, July 8, 2010

Nine Months!!!

Well, here I sit again AMAZED at the fact that yet ANOTHER month has gone by. Our boy is NINE MONTHS OLD!! He is one busy boy, that's for sure. I'm not sure where to begin...
-He is ON THE MOVE!! Crawling all over the place, exploring new rooms, new flooring, new nooks and crannies. I thought the house was pretty well child-proof until Jake took it upon himself to prove to me otherwise.
-Jake has many toys, but would rather play with the doggie door, television and receiver, Joey's cage, kitchen chairs, drawers, doors and shoes. He keeps me busy, that's for sure.
-He is pulling up and at times you can catch him practically standing on his own. I have a feeling he will be walking sooner than later.
-He is still our SUPER eater. He opens WIDE with every bite. He really hasn't turned much down. Still not a fan of Avocado unless it's mixed with other food. He likes bananas, but they have to be mashed up. Any time I try and give him a bite, he gags and shudders... its kinda cute... the shudder, not the gag.
-He is going to bed between 6:30 and 7:00 after his bath and nightly streaking through the house. The boy loves to be naked, silly boy. He sleeps all night -YAY!!!!- and wakes up between 6:30 and 7:00 (His Mommy was an early riser when she was a baby... so I guess I have myself to thank for Jake's early schedule) I don't mind though, I LOVE my mornings with my boy.
-He takes two naps during the day and is a happy boy as always.
-Oh, and he has started giving kisses... they may be slobbery and wet, but this Mommy doesn't mind. Bring on the drool... which there is A LOT of these days.
-He has two teeth, but I'm pretty sure he's working on more. That boy is a drool machine.
-This summer we started going to Kindermusic at a place here in Lubbock called Joyful Noise Music Studio. Though it was a WORKOUT for Mom, we both had a GREAT time. Jake really enjoyed being around the other kids. Needless to say he wasn't the one to sit nicely in Mommy's lap while doing finger plays and movement.. he moved from friend to friend.

We spent time visiting friends and family in Dallas recently. Jake had several "firsts" while we were there. He started "dancing" to music. (I'll post a short video, but it's not his best moves. I can't seem to catch those on camera), he had cantaloupe, watermelon, and cheerios for the first time. He got to swim in a big pool, and got to meet Dax, his cousin. Or really his second cousin,or maybe he's Jake's 3rd cousin?? Anyway, he's my cousins little boy... whatever that is. (Dax is the other precious boy with the BLUE eyes in the slide show). Jake learned all about his "East Texas folk". He joined in on the conversation with all the men at the table. He also got to "play in the rain" out on Grammie and Grandad's balcony, it didn't phase him ONE BIT.

Jake LOVES to be outside whenever possible. His FAVORITE thing to do at Grammie and Grandad's is stand out on their balcony and watch the cars go by. We've started taking walks every morning (when it's not raining) and he watches every car that passes.
Jake has also started to follow Daddy every where. He LOVES to watch Daddy get ready in the mornings. As soon as he hears Daddy get out of the shower he is off to go visit. It's so precious. I think Daddy likes the time too. Of course, what Daddy DOESN'T like is the fact that Jake is starting to notice when he leaves. This morning was the first morning that Jake fussed when Daddy left. :o( Poor guy, he LOVES his Daddy!!

We haven't had Jake's 9 month appointment yet, so I'm not sure his height and weight. I'll let you know when we find out. I hope you have enjoyed this little update. I KNOW there are things I'm forgetting, but this will have to do for now. I'll add more as I remember. Enjoy the slide show and videos.

** A note from Jake ** In a few of the pictures, it looks like I'm wearing "leggings"... I'M NOT!! Mommy puts them on me so my knees don't get scratched up and itchy in the grass. They're called baby legs... and though, not SUPER fashionable on me, I LIKE 'EM!! They also make it so I can crawl on the cement sidewalk and not get scratched up. Okay, just wanted to pass that info along. Enjoy my cool moves!!








*Update*
So just got back from Jake's 9 month appointment. His doctor said he looks like he's about 14 months old. Yep, that's our TALL and SKINNY boy.
19 3/4 lbs - 40th percentile
29 1/2" tall - 80th percentile
He did have to get a blood draw done :o( DID NOT enjoy that. G went with us, so I was mean and made him hold Jake while they did it. I think Jake could have shattered glass with his screams. HEART BREAKING!!! Glad its done and over with now.
All in All he is our HEALTHY boy!!